My name is Justin Hulett and I am a 13 year old with a congenital heart defect. I have Hypo-plastic Left Heart Syndrome. I have a Fontan and a mechanical valve, I have also had a surgical heart block. Total I have had 5 open heart surgeries, and I am pacemaker dependent. Now I can't do a lot of sports but I love to do photography, play drums, and I am a 1st degree Black Belt in Tae Kwon Do. Feel free to comment (and if you have a heart defect) share your name and your story.
I am your cousin and I just wanted to say that I admire your strength. Keep up the good work and follow your dreams. Maybe I will see you at a family reunion. :) I admire you.
Reply
Grandma Rosemary
2/10/2014 10:46:00 am
Justin, You know I am one very proud grandma. You have been my proud little hero and warrior. You are an inspiration to me. I would probably never had my replacement heart valve if I hadn't had you to look up too. You have so much strength and faith and you are to be admired. I know I have to call you a young man, now. But you are one special young man. I love you very much